3.4M
Americans living with epilepsy
1 in 26
People will develop epilepsy in their lifetime
70%
Cases can be controlled with medication
Epilepsy is the 4th most common neurological disorder in the U.S. It doesn't discriminate by age, race, or background — and for families living with it, the challenges go far beyond managing seizures. This guide gathers the best national resources across every dimension of life with epilepsy: medical, financial, housing, transportation, school, work, legal rights, and emotional support.
Use the tabs above to navigate by category. Every organization listed has been verified against its live website. Many are free or low-cost. When in doubt, the Epilepsy Foundation HelpLine (1-800-332-1000) can connect you to local resources in any state.
Seizure First Aid — What To Do
1Stay calm. Stay with the person through the seizure.
2Keep them safe. Move away sharp objects. Cushion their head.
3Time it. Note when the seizure starts and ends.
4Do NOT put anything in their mouth. Do not restrain them.
5Gently roll them on their side after convulsions stop.
6Stay until they are fully awake, aware, and safe.
Call 911 if: the seizure lasts more than 5 minutes · the person doesn't regain consciousness · a second seizure follows immediately · they are injured, pregnant, or have diabetes · it is their first known seizure · the seizure happens in water.
Epilepsy Foundation HelpLine: Call 1-800-332-1000 (English) or 1-866-748-8008 (Español), Monday–Friday 9AM–5PM ET. Specialists can connect you with local chapters, financial assistance, support groups, and community programs in your state. Online: epilepsy.com/helpline
Call 211 for local help. In most of the U.S., dialing 211 (or visiting 211.org) connects you to a trained specialist who can find local transportation assistance, food, housing, and emergency financial help in your county or city — not just national programs.
Healthcare & Medical
12 organizations · national & federal
Medical care is the foundation. These organizations help you find specialists, understand treatment options, afford medication, and navigate insurance challenges.
Epilepsy Foundation
National Nonprofit · HelpLine · Local Chapters
National
The leading national epilepsy organization. Their HelpLine (1-800-332-1000) connects patients and families with information specialists, local chapter programs, medication assistance, seizure first aid training, support groups, summer camps for kids, and SUDEP prevention resources. Available in English and Spanish.
CDC Epilepsy Program
Federal · Public Health · Research & Data
Federal
The Centers for Disease Control and Prevention's epilepsy program provides public health data, seizure first aid resources, information for schools and workplaces, and a national network of public health resources for people living with epilepsy.
American Epilepsy Society (AES)
Professional Medical Society · Find a Specialist
National
The professional society for epilepsy clinicians and researchers. Their website includes a tool to find board-certified epileptologists and epilepsy centers near you, plus resources on treatment advances and clinical trials.
NINDS — National Institute of Neurological Disorders & Stroke
Federal · NIH · Research & Clinical Trials
Federal · NIH
The primary federal agency funding epilepsy research. NINDS maintains plain-language condition information, clinical trial listings, and links to ongoing research programs. ClinicalTrials.gov (also federal) lists open trials for experimental treatments.
Brain & Life
Patient Education · American Academy of Neurology
National
Published by the American Academy of Neurology, Brain & Life is a trusted patient resource covering neurological conditions including epilepsy. Features practical guides on living with epilepsy, medication management, and current research in plain language.
Medication Affordability
NeedyMeds
Medication Assistance · Search by Drug Name
Free
Search by medication name to find patient assistance programs offered by drug manufacturers. Covers most major anti-seizure medications (ASMs). Also lists low-cost or free clinics and government programs. Free to search, no registration required.
The Assistance Fund (TAF)
Copay Assistance · Epilepsy Program
National
An independent charitable foundation that helps patients with the out-of-pocket costs of epilepsy medications — copayments, coinsurance, and deductibles. Call their helpline to check eligibility and apply. Available to insured patients who can't afford their share of costs.
Patient Advocate Foundation
Insurance Appeals · Medical Debt · Case Management
National
A national nonprofit that provides case management services for people with chronic, life-threatening, or debilitating conditions. They help patients resolve insurance coverage problems, navigate debt crisis, and access available financial assistance. Free case managers available.
Dietary & Nutritional Therapy
Charlie Foundation for Ketogenic Therapies
Dietary Therapy · Ketogenic Diet Education
National
Ketogenic and other dietary therapies are an established treatment for drug-resistant epilepsy, especially in children — roughly half of patients who try it see seizure reduction of 50% or more, and some become seizure-free. The Charlie Foundation provides education, a hospital-finder tool, recipes, and guidance for starting and maintaining the diet under medical supervision. Always start dietary therapy with a doctor or dietitian, not on your own.
Pregnancy & Women's Health
MotherToBaby
Pregnancy & Breastfeeding Medication Safety · Free Counseling
Free
A service of the nonprofit Organization of Teratology Information Specialists. Free, confidential experts answer questions about anti-seizure medication (ASM) safety before and during pregnancy and while breastfeeding — an important resource since ASM choice and dosing often need adjustment for pregnancy planning. Available by phone, text, and live chat in English and Spanish.
Medical ID & Emergency Preparedness
MedicAlert Foundation
Medical ID · Emergency Information Service
National
A nonprofit and creator of the original medical ID bracelet, now partnered directly with the Epilepsy Foundation. Members get free custom engraving on epilepsy medical IDs, and can store a digital Seizure Action Plan that first responders can access in an emergency — critical when someone can't speak for themselves during or after a seizure.
Seizure Tracking & Diaries
Seizure Tracker
Seizure Diary · Medication & Dietary-Therapy Logging
Free
A free web and mobile platform for logging seizures, medications, rescue-med use, VNS settings, and diet-therapy data, with integration for NeuroPace RNS patients. Generates shareable reports for neurologist visits — the same kind of seizure diary the Epilepsy Foundation and SSA disability reviewers recommend keeping.
The Epilepsy Foundation's HelpLine can search their database for local medication assistance programs specific to your state. Call 1-800-332-1000 or use their online search at epilepsy.com/patient-assistance.
Financial Help
7 programs · federal & national
Epilepsy may qualify you or your child for federal disability income, health insurance, and savings programs. Start with Benefits.gov to see what you qualify for, then apply directly through each program.
Benefits.gov — Federal Benefits Screener
Federal · Find Benefits You Qualify For
Federal
The official U.S. government tool for finding federal benefits programs you may be eligible for. Answer a few questions and get a personalized list of programs — including disability, healthcare, housing, food, and more. A good first step before applying anywhere.
Disability Income
Social Security Disability Insurance (SSDI)
Federal · Work-History-Based Disability Income
Federal · SSA
Epilepsy is specifically listed under SSA Blue Book Listing 11.02 as a qualifying disability condition. SSDI pays monthly benefits to adults who have worked and paid Social Security taxes and whose epilepsy prevents them from working. Eligibility depends on seizure frequency, treatment compliance, and functional impact. Medicare begins 24 months after SSDI approval. Apply online or call 1-800-772-1213.
Supplemental Security Income (SSI)
Federal · Needs-Based · No Work History Required
Federal · SSA
SSI is a needs-based program for disabled individuals with limited income and resources. Unlike SSDI, no work history is required — making it the primary path for children with epilepsy and adults who haven't worked enough to qualify for SSDI. Uses the same medical criteria (Listing 11.02). Qualifying for SSI often also unlocks Medicaid in most states.
Health Insurance
Medicare
Federal · Health Insurance for Disabled Individuals
Federal
People who are approved for SSDI become eligible for Medicare after a 24-month waiting period. Medicare covers hospital visits, outpatient care, and Part D covers prescription drugs including anti-seizure medications. If you can't afford Medicare premiums, Extra Help (Low Income Subsidy) may assist with Part D costs.
Medicaid
Federal/State · Health Coverage + Transportation Benefit
Federal / State
Low-income health insurance administered by each state. If you qualify for SSI, you generally qualify for Medicaid automatically. A critical Medicaid benefit for epilepsy patients: Non-Emergency Medical Transportation (NEMT), which provides free rides to medical appointments for Medicaid enrollees who have no other way to get there.
Savings & Tax Benefits
ABLE National Resource Center
ABLE Accounts · Tax-Advantaged Savings
National
ABLE accounts are tax-advantaged savings accounts for people with disabilities (onset before age 26). Funds can be used for disability-related expenses including medical care, transportation, housing, education, and assistive technology — without affecting SSI or Medicaid eligibility up to certain limits. The ABLE NRC helps you find and open an account.
National Disability Institute
Financial Empowerment · VITA Tax Prep · ABLE Guidance
National
NDI works to improve financial wellness for people with disabilities. They offer free tax preparation through IRS VITA sites for low-income disabled individuals, guidance on ABLE accounts, and financial planning resources. Many people with disabilities leave significant tax credits unclaimed — NDI helps change that.
Documentation matters. SSA evaluates epilepsy on seizure type, frequency, and functional impact. A seizure diary, witness statements, and detailed medical records from an ongoing treatment relationship are critical to approval. Consider consulting a disability attorney — they work on contingency (no upfront cost) and can significantly improve approval odds.
Housing
5 organizations & programs
Affordable, safe, and accessible housing is foundational. Federal programs exist to help people with disabilities access rental assistance, supportive housing, and accessible modifications.
HUD — Housing Choice Voucher (Section 8)
Federal · Rental Assistance for Low-Income Disabled Individuals
Federal · HUD
The Housing Choice Voucher Program (Section 8) provides federal rental assistance to low-income individuals and families, including people with disabilities. HUD's Section 811 program specifically funds supportive housing with services for people with significant disabilities. Apply through your local Public Housing Authority (PHA). Waitlists vary by location. HUD's website includes a PHA finder.
National Low Income Housing Coalition
Housing Advocacy · Renter Resources
National
NLIHC is a leading housing advocacy organization focused on ensuring decent, affordable homes for those with the lowest incomes. Their "Find Help" tool and state-by-state resources can connect you with rental assistance, eviction prevention programs, and affordable housing locators in your area.
National Council on Independent Living (NCIL)
Independent Living Centers · Statewide Network
National
NCIL represents a nationwide network of Independent Living Centers (ILCs) — community-based organizations run by and for people with disabilities. ILCs offer housing assistance, benefits counseling, peer support, and transition services. Find your local ILC through NCIL's directory. They advocate for accessible, integrated community living.
ADA National Network
Fair Housing Rights · ADA Technical Assistance
National
A network of 10 regional ADA Centers funded by the federal government. They provide free technical assistance on disability rights under the ADA and the Fair Housing Act — including your rights to reasonable accommodations and modifications in housing. Free guidance for landlords, tenants, and housing providers.
211 — Local Housing & Emergency Assistance
Local Connector · Emergency Rental Assistance
Free · Nationwide
Dialing 211 or visiting 211.org connects you to a local specialist who can find emergency rental assistance, utility help, shelter options, and housing programs in your county — including programs not listed on any national database. Available in most of the U.S. Multilingual assistance available.
Transportation
5 resources · driving laws + accessible transit + medical rides
Transportation is one of the biggest challenges for people with epilepsy. Driving restrictions vary by state. But alternatives exist — from federally-mandated paratransit to Medicaid medical rides to local volunteer programs.
Driving & Epilepsy — Know Your State's Law
Every state has different seizure-free waiting period requirements before driving is permitted — typically ranging from 3 to 12 months. Some states require physician reporting; others are self-report. Your doctor and the Epilepsy Foundation can walk you through your state's specific rules before you get behind the wheel.
Epilepsy Foundation — Driving Laws by State
State-by-State Driving Requirements · License Guidance
National
The Epilepsy Foundation maintains a comprehensive, up-to-date guide to driving laws for people with epilepsy in all 50 states — including seizure-free waiting periods, physician reporting requirements, and how to restore driving privileges. Essential reading before making any driving decisions. Discuss with your neurologist.
Accessible Transit & Paratransit
FTA — ADA Paratransit Rights
Federal · Americans with Disabilities Act · Public Transit
Federal · FTA
Under the ADA, transit agencies operating fixed-route bus or rail service must also provide complementary paratransit service for people who cannot use the fixed-route system due to a disability. If seizures prevent you from safely using regular buses or trains, you may qualify. Contact your local transit agency to apply for ADA paratransit eligibility. The Federal Transit Administration oversees compliance.
Medicaid Non-Emergency Medical Transportation (NEMT)
Federal/State · Free Medical Rides for Medicaid Enrollees
Federal / State
If you have Medicaid and have no other way to get to a medical appointment, Medicaid must cover transportation. This is one of the most underused Medicaid benefits for people with epilepsy. Call your Medicaid managed care plan or your state's Medicaid office to find out how to request rides to neurologist appointments, pharmacy pickups, and other medical visits.
NADTC — National Aging & Disability Transportation Center
Federal Resource · Accessible Transportation Options
Federal Resource
A federally funded center (FTA + ACL partnership) promoting accessible transportation options for older adults, people with disabilities, and caregivers. Resources on volunteer driver programs, Section 5310 funding, one-call/one-click systems, and local transportation coordination. Note: Their cooperative agreement transitioned in fall 2025 — resources remain publicly available at nadtc.org.
211 — Local Transportation & Ride Programs
Local Connector · Volunteer Drivers · Medical Rides
Free · Nationwide
211 operators know every local volunteer driver program, faith-based ride service, and county transportation program in your area — many of which are not listed in any national database. If you're looking for rides to appointments, grocery stores, or treatment centers, start with 211 before assuming nothing is available locally.
Education
5 organizations · K–12 through higher education
Children and young adults with epilepsy have legally protected rights in every school setting — from kindergarten to college. These organizations help families understand and enforce those rights.
Epilepsy Foundation — School & Education Guide
K–12 Guidance · IEPs · 504 Plans · Seizure Action Plans
National
Comprehensive resources for parents and educators: how to develop an Individualized Education Program (IEP) or 504 Plan for a student with epilepsy, what to include in a School Seizure Action Plan, how to talk to teachers, and what rights schools must provide. Printable templates and state-specific guidance available.
PACER Center
Parent Advocacy · Special Education · IEP Support
National
PACER (Parent Advocacy Coalition for Educational Rights) provides extensive resources to help parents navigate special education law, IEPs, and disability rights in schools. Offers training, publications, and a Technical Assistance for Parent Centers (TASC) network. Their Champions Against Bullying program also addresses disability-related bullying.
IDEA — Individuals with Disabilities Education Act
Federal Law · Free & Appropriate Public Education
Federal Law · OSEP
IDEA guarantees students with disabilities the right to a free and appropriate public education (FAPE) in the least restrictive environment. Children with epilepsy whose condition affects their education may qualify for special education services or a 504 Plan. This federal site explains rights, IEP requirements, procedural safeguards, and dispute resolution.
Understood.org
IEPs · 504 Plans · School Accommodations · Family Guides
National
Practical, jargon-free guides for parents of students who learn and think differently — including those with epilepsy, ADHD, and other conditions. Covers how to request an IEP evaluation, what to expect at IEP meetings, how to advocate for accommodations, and how to understand your rights in plain language.
ADA.gov — Higher Education Accommodations
Federal · College & University Disability Rights
Federal · DOJ
Students with epilepsy at colleges and universities have rights under the ADA and Section 504 of the Rehabilitation Act. Schools must provide reasonable accommodations — such as extended test time, medical leave, housing accommodations, and seizure management plans. ADA.gov explains what schools are required to do and how to file complaints if accommodations are denied.
Employment
5 organizations · accommodations + rights + job training
People with epilepsy are protected from employment discrimination and entitled to reasonable accommodations under the ADA. Many employers don't know what accommodations are possible — these resources help both employees and employers.
Job Accommodation Network (JAN)
Free Consulting · Workplace Accommodation Guidance
Free · Federal-Funded
JAN is a free, confidential service for people with disabilities and their employers. Consultants can help identify specific workplace accommodations for epilepsy — such as flexible scheduling for post-seizure recovery, remote work options, repositioning workstations near exits, or seizure response protocols. JAN's Seizure Disorders guide covers accommodations in detail. Call or search their online database.
EEOC — Equal Employment Opportunity Commission
Federal · ADA Enforcement · Discrimination Complaints
Federal
The EEOC enforces the ADA's employment provisions. If your employer has denied you a reasonable accommodation, fired you because of your epilepsy, or otherwise discriminated against you, you can file a charge with the EEOC. Charges must generally be filed within 180–300 days of the discriminatory act. The EEOC website has specific guidance on epilepsy in the workplace.
Office of Disability Employment Policy (ODEP)
Federal · Employer Resources · Disability-Inclusive Workplaces
Federal · DOL
ODEP is the federal agency focused on increasing employment opportunities for people with disabilities. Their resources include the EARN (Employer Assistance and Resource Network) portal for employers, guidance on inclusive hiring, and the AskEARN.org database of evidence-based disability employment practices. Useful for both job seekers and managers.
Vocational Rehabilitation (State VR Programs)
State Programs · Job Training · Placement · Free Services
State Programs
Every state has a Vocational Rehabilitation (VR) agency that provides free or low-cost services to help people with disabilities prepare for, obtain, maintain, or advance in employment. Services may include job training, assistive technology, education assistance, career counseling, and job placement support. Funded through the federal Rehabilitation Services Administration (RSA). Find your state's VR agency through the RSA website.
Epilepsy Foundation — Employment Resources
Workplace Rights · Disclosure Guidance · ADA Overview
National
The Epilepsy Foundation's employment section explains your ADA rights at work, how and whether to disclose your epilepsy to an employer, what accommodations to request, and what to do if you face discrimination. Practical guidance for navigating workplace conversations about epilepsy — including how to handle job applications and interviews.
Community & Support
6 organizations · support groups + peer connection + assistance programs
You are not alone. Epilepsy affects 3.4 million Americans. These organizations offer peer connection, support groups, camps, travel assistance, and community resources for people across the country.
Epilepsy Foundation — Support Groups & Assistance Programs
National · Local Chapters · Camps · Travel Assistance
National
The Epilepsy Foundation connects patients and families with local and online support groups, epilepsy camps for children and teens, peer mentor programs, and financial assistance for epilepsy-related travel to medical care. Their local chapters across the country provide community-based programs. The HelpLine (1-800-332-1000) can connect you with your nearest chapter.
Epilepsy Alliance America
National Network · Regional Member Organizations
National
Launched in 2018, Epilepsy Alliance America is a national network of community-based epilepsy organizations dedicated to promoting independence and quality of life for people with epilepsy and their families. Their member organizations provide direct services, support, and advocacy across local communities nationwide. Visit their website to find member organizations in your region.
Veterans with Epilepsy — VA Disability Benefits
Federal · VA · Service-Connected Disability Claims
Federal · VA
Veterans whose epilepsy is service-connected may qualify for VA disability compensation, VA health care, and other VA benefits. Epilepsy can develop following traumatic brain injury (TBI), a common service-related condition. The VA also provides caregiver support through the Program of Comprehensive Assistance for Family Caregivers (PCAFC). File a claim at VA.gov or call 1-800-827-1000.
CURE Epilepsy
Research Advocacy · Funding · Patient Community
National
CURE Epilepsy (Citizens United for Research in Epilepsy) is a nonprofit focused on funding epilepsy research and advocating for patients. They provide patient resources, a community for those with drug-resistant epilepsy, information on clinical trials, and updates on the latest treatment research. A voice in pushing for better treatments and ultimately a cure.
SUDEP Awareness & Prevention
Danny Did Foundation
SUDEP Awareness · Seizure Detection Device Guidance
National
Founded by a family who lost their son to Sudden Unexpected Death in Epilepsy (SUDEP), this foundation is the leading voice raising awareness of SUDEP risk and prevention. Their site explains what SUDEP is, who is most at risk, and what seizure-detection and monitoring devices exist to help reduce risk — information many families are never given by a clinician.
211 — Local Community Services
Local Connector · Food · Utilities · Crisis Services
Free · Nationwide
211 connects you to local community resources that national organizations can't: emergency food pantries, utility shutoff prevention, crisis counseling, local disability-specific programs, and more. Specialists know your county's resources in real-time. Dial 211 from any phone or visit 211.org to search by ZIP code. Available 24/7 in many areas.
Caregivers & Family
8 organizations · support · respite · practical guidance
Caring for someone with epilepsy is one of the most demanding and often invisible jobs there is. These resources exist specifically to support you — not just the person you care for.
Epilepsy Foundation — Caregiver & Family Resources
Seizure Action Plans · Emergency Preparedness · Family Guides
National
The Epilepsy Foundation's caregiver resources include how to create a Seizure Action Plan, what to do in a seizure emergency, how to talk to family members and friends about epilepsy, how to support a child in school, and how to take care of yourself as a caregiver. Also covers resources for siblings and for aging parents caring for adult children with epilepsy.
ARCH National Respite Network
Respite Care · Find Local Relief Services
National
ARCH supports the development of quality respite care for families of children and adults with disabilities or special needs. Their National Respite Locator helps caregivers find respite care services in their state — temporary relief that allows caregivers to rest, recover, and prevent burnout. Many programs are low-cost or subsidized. Caregiver burnout is a serious health risk — respite matters.
Caregiver Action Network
Peer Support · Advocacy · Caregiver Community
National
A national nonprofit serving family caregivers of all conditions. CAN offers peer-to-peer support, a caregiver help desk, and advocacy resources. Their focus on the emotional and practical reality of caregiving makes this a strong resource for caregivers of people with chronic neurological conditions like epilepsy. Free membership includes access to online community and resources.
Family Caregiver Alliance
Fact Sheets · State Resources · Caregiver Self-Care
National
FCA provides extensive, research-based resources for family caregivers — including condition-specific fact sheets, state-by-state program guides, legal planning resources, and information on financial help for caregivers. Their National Center on Caregiving develops programs and policies to support caregivers across the country. A particularly strong source for legal and financial planning.
Child Neurology Foundation
Pediatric Epilepsy · Family Navigation · Condition Guides
National
For families of children with epilepsy and other neurological conditions. The Child Neurology Foundation provides educational resources, family guides by diagnosis, a webinar library, and a community where parents can connect with others navigating similar journeys. Their disease-specific resources on childhood epilepsy syndromes (Dravet, LGS, infantile spasms, etc.) are particularly helpful for rare epilepsies.
Rare & Genetic Epilepsy Syndromes
Dravet Syndrome Foundation
Rare Genetic Epilepsy · Family Support · Research Funding
National
Dravet syndrome is a rare, drug-resistant genetic epilepsy that begins in infancy, most often caused by an SCN1A gene mutation. The Dravet Syndrome Foundation funds research, provides family support and educational resources (including guidance for adults with Dravet), and co-developed the C.A.R.E. Binder — a long-term care planning tool for families of children with severe, rare epilepsies.
LGS Foundation
Lennox-Gastaut Syndrome · Family Support · Patient Assistance
National
Lennox-Gastaut syndrome (LGS) is a severe childhood-onset epilepsy involving multiple seizure types that are typically resistant to standard treatment. The LGS Foundation funds research and awareness, connects families to a support community, and runs a Patient Assistance Program that helps cover medical expenses insurance doesn't.
TSC Alliance
Tuberous Sclerosis Complex · Research · Family Support
National
Tuberous sclerosis complex (TSC) is a genetic condition that causes benign tumors in multiple organs, including the brain, and is a common cause of infantile spasms and drug-resistant epilepsy. TSC Alliance funds research toward a cure, maintains a clinic directory, and connects families to a large peer support community.
Caregiver health matters. Caregiver burnout is a medical condition, not a personal failure. Reaching out for respite, peer support, or your own counseling is not giving up — it's what makes sustained caregiving possible. Your needs are real. ARCH's respite locator and CAN's help desk are good first calls.
Legal & Advocacy
5 organizations · rights · enforcement · representation
People with epilepsy have legally protected rights in employment, housing, education, public accommodations, and healthcare. These organizations provide the knowledge and legal resources to enforce those rights.
ADA.gov — Official ADA Information
Federal · Department of Justice · Your Legal Rights
Federal · DOJ
The official source for information on the Americans with Disabilities Act. Covers your rights in employment, state and local government, public accommodations, transportation, and telecommunications. Includes guidance on filing ADA complaints, understanding what "reasonable accommodation" means, and how the law applies to people with epilepsy specifically. Free.
National Disability Rights Network (NDRN)
Protection & Advocacy · Free Legal Help by State
National
NDRN is the membership organization for the federally mandated Protection and Advocacy (P&A) network — one free legal advocacy organization in every U.S. state and territory. P&A agencies provide legal representation, investigation of abuse and neglect, and systemic advocacy for people with disabilities. Find your state's P&A through NDRN's directory.
ADA National Network
Technical Assistance · ADA Questions · Regional Centers
Free · Federal-Funded
Ten regional ADA Centers funded by the federal government provide free technical assistance on ADA compliance — to both people with disabilities and the organizations that serve them. If you have a question about your ADA rights in a specific situation (at a hospital, school, employer, or public place), call the center for your region. Free, confidential, and nonpartisan.
Disability Rights Advocates
Nonprofit Legal Organization · Systemic Litigation
National
DRA is a leading national nonprofit disability rights legal center that pursues high-impact cases on behalf of people with disabilities. They focus on systemic change — taking on cases involving employment, education, housing, healthcare access, and public accommodations that affect large numbers of disabled people. Not a helpline for individual cases, but a source for understanding large-scale advocacy efforts.
Epilepsy Foundation — Advocacy & Policy
Legislative Advocacy · State Policy · Grassroots Action
National
The Epilepsy Foundation advocates at the federal and state level on issues including drug affordability, driving laws, school policies, and research funding. Their advocacy section explains current legislative priorities, how to contact your representatives, and how to get involved in epilepsy advocacy efforts in your state. The National Plan for Epilepsy Act (S.494/H.R.1189) is their current legislative priority.
Not sure where to start? Call the ADA National Network at 1-800-949-4232 for free, confidential guidance on any ADA rights question. For legal representation in disability cases, your state's Protection & Advocacy organization (found through NDRN) provides free legal help for people with disabilities.